[Save the Date] 3rd International FAIR data 'visiting' for Duchenne & Other Rare Diseases

schedule

Tuesday, November 22, 7:00am - 11:00am (EST)

south_america expand_more Time shown in-05:00 America, New York
search
close

Time zone

am/pm

24h

  • (GMT-11:00)Pacific, Midway
  • (GMT-11:00)Pacific, Niue
  • (GMT-11:00)Pacific, Pago Pago
  • (GMT-10:00)America, Adak
  • (GMT-10:00)Pacific, Honolulu
  • (GMT-10:00)Pacific, Rarotonga
  • (GMT-10:00)Pacific, Tahiti
  • (GMT-09:30)Pacific, Marquesas
  • (GMT-09:00)America, Anchorage
  • (GMT-09:00)America, Juneau
  • (GMT-09:00)America, Metlakatla
  • (GMT-09:00)America, Nome
  • (GMT-09:00)America, Sitka
  • (GMT-09:00)America, Yakutat
  • (GMT-09:00)Pacific, Gambier
  • (GMT-08:00)America, Los Angeles
  • (GMT-08:00)America, Tijuana
  • (GMT-08:00)America, Vancouver
  • (GMT-08:00)Pacific, Pitcairn
  • (GMT-07:00)America, Boise
  • (GMT-07:00)America, Cambridge Bay
  • (GMT-07:00)America, Chihuahua
  • (GMT-07:00)America, Creston
  • (GMT-07:00)America, Dawson
  • (GMT-07:00)America, Dawson Creek
  • (GMT-07:00)America, Denver
  • (GMT-07:00)America, Edmonton
  • (GMT-07:00)America, Fort Nelson
  • (GMT-07:00)America, Hermosillo
  • (GMT-07:00)America, Inuvik
  • (GMT-07:00)America, Mazatlan
  • (GMT-07:00)America, Ojinaga
  • (GMT-07:00)America, Phoenix
  • (GMT-07:00)America, Whitehorse
  • (GMT-07:00)America, Yellowknife
  • (GMT-06:00)America, Bahia Banderas
  • (GMT-06:00)America, Belize
  • (GMT-06:00)America, Chicago
  • (GMT-06:00)America, Costa Rica
  • (GMT-06:00)America, El Salvador
  • (GMT-06:00)America, Guatemala
  • (GMT-06:00)America, Indiana, Knox
  • (GMT-06:00)America, Indiana, Tell City
  • (GMT-06:00)America, Managua
  • (GMT-06:00)America, Matamoros
  • (GMT-06:00)America, Menominee
  • (GMT-06:00)America, Merida
  • (GMT-06:00)America, Mexico City
  • (GMT-06:00)America, Monterrey
  • (GMT-06:00)America, North Dakota, Beulah
  • (GMT-06:00)America, North Dakota, Center
  • (GMT-06:00)America, North Dakota, New Salem
  • (GMT-06:00)America, Rainy River
  • (GMT-06:00)America, Rankin Inlet
  • (GMT-06:00)America, Regina
  • (GMT-06:00)America, Resolute
  • (GMT-06:00)America, Swift Current
  • (GMT-06:00)America, Tegucigalpa
  • (GMT-06:00)America, Winnipeg
  • (GMT-06:00)Pacific, Galapagos
  • (GMT-05:00)America, Atikokan
  • (GMT-05:00)America, Bogota
  • (GMT-05:00)America, Cancun
  • (GMT-05:00)America, Cayman
  • (GMT-05:00)America, Detroit
  • (GMT-05:00)America, Eirunepe
  • (GMT-05:00)America, Grand Turk
  • (GMT-05:00)America, Guayaquil
  • (GMT-05:00)America, Havana
  • (GMT-05:00)America, Indiana, Indianapolis
  • (GMT-05:00)America, Indiana, Marengo
  • (GMT-05:00)America, Indiana, Petersburg
  • (GMT-05:00)America, Indiana, Vevay
  • (GMT-05:00)America, Indiana, Vincennes
  • (GMT-05:00)America, Indiana, Winamac
  • (GMT-05:00)America, Iqaluit
  • (GMT-05:00)America, Jamaica
  • (GMT-05:00)America, Kentucky, Louisville
  • (GMT-05:00)America, Kentucky, Monticello
  • (GMT-05:00)America, Lima
  • (GMT-05:00)America, Nassau
  • (GMT-05:00)America, New York
  • (GMT-05:00)America, Nipigon
  • (GMT-05:00)America, Panama
  • (GMT-05:00)America, Pangnirtung
  • (GMT-05:00)America, Port-au-Prince
  • (GMT-05:00)America, Rio Branco
  • (GMT-05:00)America, Thunder Bay
  • (GMT-05:00)America, Toronto
  • (GMT-05:00)Pacific, Easter
  • (GMT-04:00)America, Anguilla
  • (GMT-04:00)America, Antigua
  • (GMT-04:00)America, Aruba
  • (GMT-04:00)America, Barbados
  • (GMT-04:00)America, Blanc-Sablon
  • (GMT-04:00)America, Boa Vista
  • (GMT-04:00)America, Campo Grande
  • (GMT-04:00)America, Caracas
  • (GMT-04:00)America, Cuiaba
  • (GMT-04:00)America, Curacao
  • (GMT-04:00)America, Dominica
  • (GMT-04:00)America, Glace Bay
  • (GMT-04:00)America, Goose Bay
  • (GMT-04:00)America, Grenada
  • (GMT-04:00)America, Guadeloupe
  • (GMT-04:00)America, Guyana
  • (GMT-04:00)America, Halifax
  • (GMT-04:00)America, Kralendijk
  • (GMT-04:00)America, La Paz
  • (GMT-04:00)America, Lower Princes
  • (GMT-04:00)America, Manaus
  • (GMT-04:00)America, Marigot
  • (GMT-04:00)America, Martinique
  • (GMT-04:00)America, Moncton
  • (GMT-04:00)America, Montserrat
  • (GMT-04:00)America, Port of Spain
  • (GMT-04:00)America, Porto Velho
  • (GMT-04:00)America, Puerto Rico
  • (GMT-04:00)America, Santo Domingo
  • (GMT-04:00)America, St Barthelemy
  • (GMT-04:00)America, St Kitts
  • (GMT-04:00)America, St Lucia
  • (GMT-04:00)America, St Thomas
  • (GMT-04:00)America, St Vincent
  • (GMT-04:00)America, Thule
  • (GMT-04:00)America, Tortola
  • (GMT-04:00)Atlantic, Bermuda
  • (GMT-03:30)America, St Johns
  • (GMT-03:00)America, Araguaina
  • (GMT-03:00)America, Argentina, Buenos Aires
  • (GMT-03:00)America, Argentina, Catamarca
  • (GMT-03:00)America, Argentina, Cordoba
  • (GMT-03:00)America, Argentina, Jujuy
  • (GMT-03:00)America, Argentina, La Rioja
  • (GMT-03:00)America, Argentina, Mendoza
  • (GMT-03:00)America, Argentina, Rio Gallegos
  • (GMT-03:00)America, Argentina, Salta
  • (GMT-03:00)America, Argentina, San Juan
  • (GMT-03:00)America, Argentina, San Luis
  • (GMT-03:00)America, Argentina, Tucuman
  • (GMT-03:00)America, Argentina, Ushuaia
  • (GMT-03:00)America, Asuncion
  • (GMT-03:00)America, Bahia
  • (GMT-03:00)America, Belem
  • (GMT-03:00)America, Cayenne
  • (GMT-03:00)America, Fortaleza
  • (GMT-03:00)America, Maceio
  • (GMT-03:00)America, Miquelon
  • (GMT-03:00)America, Montevideo
  • (GMT-03:00)America, Nuuk
  • (GMT-03:00)America, Paramaribo
  • (GMT-03:00)America, Punta Arenas
  • (GMT-03:00)America, Recife
  • (GMT-03:00)America, Santarem
  • (GMT-03:00)America, Santiago
  • (GMT-03:00)America, Sao Paulo
  • (GMT-03:00)Antarctica, Palmer
  • (GMT-03:00)Antarctica, Rothera
  • (GMT-03:00)Atlantic, Stanley
  • (GMT-02:00)America, Noronha
  • (GMT-02:00)Atlantic, South Georgia
  • (GMT-01:00)America, Scoresbysund
  • (GMT-01:00)Atlantic, Azores
  • (GMT-01:00)Atlantic, Cape Verde
  • (GMT+00:00)Africa, Abidjan
  • (GMT+00:00)Africa, Accra
  • (GMT+00:00)Africa, Bamako
  • (GMT+00:00)Africa, Banjul
  • (GMT+00:00)Africa, Bissau
  • (GMT+00:00)Africa, Conakry
  • (GMT+00:00)Africa, Dakar
  • (GMT+00:00)Africa, Freetown
  • (GMT+00:00)Africa, Lome
  • (GMT+00:00)Africa, Monrovia
  • (GMT+00:00)Africa, Nouakchott
  • (GMT+00:00)Africa, Ouagadougou
  • (GMT+00:00)Africa, Sao Tome
  • (GMT+00:00)America, Danmarkshavn
  • (GMT+00:00)Antarctica, Troll
  • (GMT+00:00)Atlantic, Canary
  • (GMT+00:00)Atlantic, Faroe
  • (GMT+00:00)Atlantic, Madeira
  • (GMT+00:00)Atlantic, Reykjavik
  • (GMT+00:00)Atlantic, St Helena
  • (GMT+00:00)Europe, Dublin
  • (GMT+00:00)Europe, Guernsey
  • (GMT+00:00)Europe, Isle of Man
  • (GMT+00:00)Europe, Jersey
  • (GMT+00:00)Europe, Lisbon
  • (GMT+00:00)Europe, London
  • (GMT+00:00)UTC
  • (GMT+01:00)Africa, Algiers
  • (GMT+01:00)Africa, Bangui
  • (GMT+01:00)Africa, Brazzaville
  • (GMT+01:00)Africa, Casablanca
  • (GMT+01:00)Africa, Ceuta
  • (GMT+01:00)Africa, Douala
  • (GMT+01:00)Africa, El Aaiun
  • (GMT+01:00)Africa, Kinshasa
  • (GMT+01:00)Africa, Lagos
  • (GMT+01:00)Africa, Libreville
  • (GMT+01:00)Africa, Luanda
  • (GMT+01:00)Africa, Malabo
  • (GMT+01:00)Africa, Ndjamena
  • (GMT+01:00)Africa, Niamey
  • (GMT+01:00)Africa, Porto-Novo
  • (GMT+01:00)Africa, Tunis
  • (GMT+01:00)Arctic, Longyearbyen
  • (GMT+01:00)Europe, Amsterdam
  • (GMT+01:00)Europe, Andorra
  • (GMT+01:00)Europe, Belgrade
  • (GMT+01:00)Europe, Berlin
  • (GMT+01:00)Europe, Bratislava
  • (GMT+01:00)Europe, Brussels
  • (GMT+01:00)Europe, Budapest
  • (GMT+01:00)Europe, Busingen
  • (GMT+01:00)Europe, Copenhagen
  • (GMT+01:00)Europe, Gibraltar
  • (GMT+01:00)Europe, Ljubljana
  • (GMT+01:00)Europe, Luxembourg
  • (GMT+01:00)Europe, Madrid
  • (GMT+01:00)Europe, Malta
  • (GMT+01:00)Europe, Monaco
  • (GMT+01:00)Europe, Oslo
  • (GMT+01:00)Europe, Paris
  • (GMT+01:00)Europe, Podgorica
  • (GMT+01:00)Europe, Prague
  • (GMT+01:00)Europe, Rome
  • (GMT+01:00)Europe, San Marino
  • (GMT+01:00)Europe, Sarajevo
  • (GMT+01:00)Europe, Skopje
  • (GMT+01:00)Europe, Stockholm
  • (GMT+01:00)Europe, Tirane
  • (GMT+01:00)Europe, Vaduz
  • (GMT+01:00)Europe, Vatican
  • (GMT+01:00)Europe, Vienna
  • (GMT+01:00)Europe, Warsaw
  • (GMT+01:00)Europe, Zagreb
  • (GMT+01:00)Europe, Zurich
  • (GMT+02:00)Africa, Blantyre
  • (GMT+02:00)Africa, Bujumbura
  • (GMT+02:00)Africa, Cairo
  • (GMT+02:00)Africa, Gaborone
  • (GMT+02:00)Africa, Harare
  • (GMT+02:00)Africa, Johannesburg
  • (GMT+02:00)Africa, Juba
  • (GMT+02:00)Africa, Khartoum
  • (GMT+02:00)Africa, Kigali
  • (GMT+02:00)Africa, Lubumbashi
  • (GMT+02:00)Africa, Lusaka
  • (GMT+02:00)Africa, Maputo
  • (GMT+02:00)Africa, Maseru
  • (GMT+02:00)Africa, Mbabane
  • (GMT+02:00)Africa, Tripoli
  • (GMT+02:00)Africa, Windhoek
  • (GMT+02:00)Asia, Amman
  • (GMT+02:00)Asia, Beirut
  • (GMT+02:00)Asia, Damascus
  • (GMT+02:00)Asia, Famagusta
  • (GMT+02:00)Asia, Gaza
  • (GMT+02:00)Asia, Hebron
  • (GMT+02:00)Asia, Jerusalem
  • (GMT+02:00)Asia, Nicosia
  • (GMT+02:00)Europe, Athens
  • (GMT+02:00)Europe, Bucharest
  • (GMT+02:00)Europe, Chisinau
  • (GMT+02:00)Europe, Helsinki
  • (GMT+02:00)Europe, Kaliningrad
  • (GMT+02:00)Europe, Kyiv
  • (GMT+02:00)Europe, Mariehamn
  • (GMT+02:00)Europe, Riga
  • (GMT+02:00)Europe, Sofia
  • (GMT+02:00)Europe, Tallinn
  • (GMT+02:00)Europe, Vilnius
  • (GMT+03:00)Africa, Addis Ababa
  • (GMT+03:00)Africa, Asmara
  • (GMT+03:00)Africa, Dar es Salaam
  • (GMT+03:00)Africa, Djibouti
  • (GMT+03:00)Africa, Kampala
  • (GMT+03:00)Africa, Mogadishu
  • (GMT+03:00)Africa, Nairobi
  • (GMT+03:00)Antarctica, Syowa
  • (GMT+03:00)Asia, Aden
  • (GMT+03:00)Asia, Baghdad
  • (GMT+03:00)Asia, Bahrain
  • (GMT+03:00)Asia, Kuwait
  • (GMT+03:00)Asia, Qatar
  • (GMT+03:00)Asia, Riyadh
  • (GMT+03:00)Europe, Istanbul
  • (GMT+03:00)Europe, Kirov
  • (GMT+03:00)Europe, Minsk
  • (GMT+03:00)Europe, Moscow
  • (GMT+03:00)Europe, Simferopol
  • (GMT+03:00)Europe, Volgograd
  • (GMT+03:00)Indian, Antananarivo
  • (GMT+03:00)Indian, Comoro
  • (GMT+03:00)Indian, Mayotte
  • (GMT+03:30)Asia, Tehran
  • (GMT+04:00)Asia, Baku
  • (GMT+04:00)Asia, Dubai
  • (GMT+04:00)Asia, Muscat
  • (GMT+04:00)Asia, Tbilisi
  • (GMT+04:00)Asia, Yerevan
  • (GMT+04:00)Europe, Astrakhan
  • (GMT+04:00)Europe, Samara
  • (GMT+04:00)Europe, Saratov
  • (GMT+04:00)Europe, Ulyanovsk
  • (GMT+04:00)Indian, Mahe
  • (GMT+04:00)Indian, Mauritius
  • (GMT+04:00)Indian, Reunion
  • (GMT+04:30)Asia, Kabul
  • (GMT+05:00)Antarctica, Mawson
  • (GMT+05:00)Asia, Aqtau
  • (GMT+05:00)Asia, Aqtobe
  • (GMT+05:00)Asia, Ashgabat
  • (GMT+05:00)Asia, Atyrau
  • (GMT+05:00)Asia, Dushanbe
  • (GMT+05:00)Asia, Karachi
  • (GMT+05:00)Asia, Oral
  • (GMT+05:00)Asia, Qyzylorda
  • (GMT+05:00)Asia, Samarkand
  • (GMT+05:00)Asia, Tashkent
  • (GMT+05:00)Asia, Yekaterinburg
  • (GMT+05:00)Indian, Kerguelen
  • (GMT+05:00)Indian, Maldives
  • (GMT+05:30)Asia, Colombo
  • (GMT+05:30)Asia, Kolkata
  • (GMT+05:45)Asia, Kathmandu
  • (GMT+06:00)Antarctica, Vostok
  • (GMT+06:00)Asia, Almaty
  • (GMT+06:00)Asia, Bishkek
  • (GMT+06:00)Asia, Dhaka
  • (GMT+06:00)Asia, Omsk
  • (GMT+06:00)Asia, Qostanay
  • (GMT+06:00)Asia, Thimphu
  • (GMT+06:00)Asia, Urumqi
  • (GMT+06:00)Indian, Chagos
  • (GMT+06:30)Asia, Yangon
  • (GMT+06:30)Indian, Cocos
  • (GMT+07:00)Antarctica, Davis
  • (GMT+07:00)Asia, Bangkok
  • (GMT+07:00)Asia, Barnaul
  • (GMT+07:00)Asia, Ho Chi Minh
  • (GMT+07:00)Asia, Hovd
  • (GMT+07:00)Asia, Jakarta
  • (GMT+07:00)Asia, Krasnoyarsk
  • (GMT+07:00)Asia, Novokuznetsk
  • (GMT+07:00)Asia, Novosibirsk
  • (GMT+07:00)Asia, Phnom Penh
  • (GMT+07:00)Asia, Pontianak
  • (GMT+07:00)Asia, Tomsk
  • (GMT+07:00)Asia, Vientiane
  • (GMT+07:00)Indian, Christmas
  • (GMT+08:00)Asia, Brunei
  • (GMT+08:00)Asia, Choibalsan
  • (GMT+08:00)Asia, Hong Kong
  • (GMT+08:00)Asia, Irkutsk
  • (GMT+08:00)Asia, Kuala Lumpur
  • (GMT+08:00)Asia, Kuching
  • (GMT+08:00)Asia, Macau
  • (GMT+08:00)Asia, Makassar
  • (GMT+08:00)Asia, Manila
  • (GMT+08:00)Asia, Shanghai
  • (GMT+08:00)Asia, Singapore
  • (GMT+08:00)Asia, Taipei
  • (GMT+08:00)Asia, Ulaanbaatar
  • (GMT+08:00)Australia, Perth
  • (GMT+08:45)Australia, Eucla
  • (GMT+09:00)Asia, Chita
  • (GMT+09:00)Asia, Dili
  • (GMT+09:00)Asia, Jayapura
  • (GMT+09:00)Asia, Khandyga
  • (GMT+09:00)Asia, Pyongyang
  • (GMT+09:00)Asia, Seoul
  • (GMT+09:00)Asia, Tokyo
  • (GMT+09:00)Asia, Yakutsk
  • (GMT+09:00)Pacific, Palau
  • (GMT+09:30)Australia, Darwin
  • (GMT+10:00)Antarctica, DumontDUrville
  • (GMT+10:00)Asia, Ust-Nera
  • (GMT+10:00)Asia, Vladivostok
  • (GMT+10:00)Australia, Brisbane
  • (GMT+10:00)Australia, Lindeman
  • (GMT+10:00)Pacific, Chuuk
  • (GMT+10:00)Pacific, Guam
  • (GMT+10:00)Pacific, Port Moresby
  • (GMT+10:00)Pacific, Saipan
  • (GMT+10:30)Australia, Adelaide
  • (GMT+10:30)Australia, Broken Hill
  • (GMT+11:00)Antarctica, Casey
  • (GMT+11:00)Antarctica, Macquarie
  • (GMT+11:00)Asia, Magadan
  • (GMT+11:00)Asia, Sakhalin
  • (GMT+11:00)Asia, Srednekolymsk
  • (GMT+11:00)Australia, Hobart
  • (GMT+11:00)Australia, Lord Howe
  • (GMT+11:00)Australia, Melbourne
  • (GMT+11:00)Australia, Sydney
  • (GMT+11:00)Pacific, Bougainville
  • (GMT+11:00)Pacific, Efate
  • (GMT+11:00)Pacific, Guadalcanal
  • (GMT+11:00)Pacific, Kosrae
  • (GMT+11:00)Pacific, Noumea
  • (GMT+11:00)Pacific, Pohnpei
  • (GMT+12:00)Asia, Anadyr
  • (GMT+12:00)Asia, Kamchatka
  • (GMT+12:00)Pacific, Funafuti
  • (GMT+12:00)Pacific, Kwajalein
  • (GMT+12:00)Pacific, Majuro
  • (GMT+12:00)Pacific, Nauru
  • (GMT+12:00)Pacific, Norfolk
  • (GMT+12:00)Pacific, Tarawa
  • (GMT+12:00)Pacific, Wake
  • (GMT+12:00)Pacific, Wallis
  • (GMT+13:00)Antarctica, McMurdo
  • (GMT+13:00)Pacific, Apia
  • (GMT+13:00)Pacific, Auckland
  • (GMT+13:00)Pacific, Fakaofo
  • (GMT+13:00)Pacific, Fiji
  • (GMT+13:00)Pacific, Kanton
  • (GMT+13:00)Pacific, Tongatapu
  • (GMT+13:45)Pacific, Chatham
  • (GMT+14:00)Pacific, Kiritimati

Suggestions

Your search did not return any results.

    For the first time, the World Duchenne Organization will team up with RaDiOrg Rare Diseases in Belgium and SMA Europe in Germany to form a wider network of approximately 160 Patient Organizations all interested in how the FAIR principles could make a difference in optimising the use of patients’ data. 

    Combined with the expertise of clinicians from ERN EURO-NMD, this small event consortium hopes to provide the broader Rare Diseases network, a better understanding of what is being implemented at the European level in regards to data ‘visiting’ across borders. The word ‘visiting’ will replace ‘sharing’ as with FAIR technologies data stay at source.

    More information on the agenda and how to register follows soon.

    Add to Calendar 2022/11/22 13:00:00 2022/11/22 17:00:00 Europe/Amsterdam [Save the Date] 3rd International FAIR data 'visiting' for Duchenne & Other Rare Diseases For the first time, the World Duchenne Organization will team up with RaDiOrg Rare Diseases in Belgium and SMA Europe in Germany to form a wider network of approximately 160 Patient Organizations all interested in how the FAIR principles could make a difference in optimising the use of patients’ data. 

    Combined with the expertise of clinicians from ERN EURO-NMD, this small event consortium hopes to provide the broader Rare Diseases network, a better understanding of what is being implemented at the European level in regards to data ‘visiting’ across borders. The word ‘visiting’ will replace ‘sharing’ as with FAIR technologies data stay at source.

    More information on the agenda and how to register follows soon.
    Online false MM/DD/YYYY OPAQUE aOHdSwivlzRPdUtuMmVK47839
    location_on

    Online

    person

    World Duchenne Organization, info@worldduchenne.org