[Save the Date] 3rd International FAIR data 'visiting' for Duchenne & Other Rare Diseases

schedule

Tuesday, November 22, 7:00am - 11:00am (EST)

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am/pm

24h

  • (GMT-11:00)Pacific, Midway
  • (GMT-11:00)Pacific, Niue
  • (GMT-11:00)Pacific, Pago Pago
  • (GMT-10:00)Pacific, Honolulu
  • (GMT-10:00)Pacific, Rarotonga
  • (GMT-10:00)Pacific, Tahiti
  • (GMT-09:30)Pacific, Marquesas
  • (GMT-09:00)America, Adak
  • (GMT-09:00)Pacific, Gambier
  • (GMT-08:00)America, Anchorage
  • (GMT-08:00)America, Juneau
  • (GMT-08:00)America, Metlakatla
  • (GMT-08:00)America, Nome
  • (GMT-08:00)America, Sitka
  • (GMT-08:00)America, Yakutat
  • (GMT-08:00)Pacific, Pitcairn
  • (GMT-07:00)America, Creston
  • (GMT-07:00)America, Dawson
  • (GMT-07:00)America, Dawson Creek
  • (GMT-07:00)America, Fort Nelson
  • (GMT-07:00)America, Hermosillo
  • (GMT-07:00)America, Los Angeles
  • (GMT-07:00)America, Phoenix
  • (GMT-07:00)America, Tijuana
  • (GMT-07:00)America, Vancouver
  • (GMT-07:00)America, Whitehorse
  • (GMT-06:00)America, Belize
  • (GMT-06:00)America, Boise
  • (GMT-06:00)America, Cambridge Bay
  • (GMT-06:00)America, Chihuahua
  • (GMT-06:00)America, Costa Rica
  • (GMT-06:00)America, Denver
  • (GMT-06:00)America, Edmonton
  • (GMT-06:00)America, El Salvador
  • (GMT-06:00)America, Guatemala
  • (GMT-06:00)America, Inuvik
  • (GMT-06:00)America, Managua
  • (GMT-06:00)America, Mazatlan
  • (GMT-06:00)America, Ojinaga
  • (GMT-06:00)America, Regina
  • (GMT-06:00)America, Swift Current
  • (GMT-06:00)America, Tegucigalpa
  • (GMT-06:00)America, Yellowknife
  • (GMT-06:00)Pacific, Easter
  • (GMT-06:00)Pacific, Galapagos
  • (GMT-05:00)America, Atikokan
  • (GMT-05:00)America, Bahia Banderas
  • (GMT-05:00)America, Bogota
  • (GMT-05:00)America, Cancun
  • (GMT-05:00)America, Cayman
  • (GMT-05:00)America, Chicago
  • (GMT-05:00)America, Eirunepe
  • (GMT-05:00)America, Guayaquil
  • (GMT-05:00)America, Indiana, Knox
  • (GMT-05:00)America, Indiana, Tell City
  • (GMT-05:00)America, Jamaica
  • (GMT-05:00)America, Lima
  • (GMT-05:00)America, Matamoros
  • (GMT-05:00)America, Menominee
  • (GMT-05:00)America, Merida
  • (GMT-05:00)America, Mexico City
  • (GMT-05:00)America, Monterrey
  • (GMT-05:00)America, North Dakota, Beulah
  • (GMT-05:00)America, North Dakota, Center
  • (GMT-05:00)America, North Dakota, New Salem
  • (GMT-05:00)America, Panama
  • (GMT-05:00)America, Rainy River
  • (GMT-05:00)America, Rankin Inlet
  • (GMT-05:00)America, Resolute
  • (GMT-05:00)America, Rio Branco
  • (GMT-05:00)America, Winnipeg
  • (GMT-04:00)America, Anguilla
  • (GMT-04:00)America, Antigua
  • (GMT-04:00)America, Aruba
  • (GMT-04:00)America, Asuncion
  • (GMT-04:00)America, Barbados
  • (GMT-04:00)America, Blanc-Sablon
  • (GMT-04:00)America, Boa Vista
  • (GMT-04:00)America, Campo Grande
  • (GMT-04:00)America, Caracas
  • (GMT-04:00)America, Cuiaba
  • (GMT-04:00)America, Curacao
  • (GMT-04:00)America, Detroit
  • (GMT-04:00)America, Dominica
  • (GMT-04:00)America, Grand Turk
  • (GMT-04:00)America, Grenada
  • (GMT-04:00)America, Guadeloupe
  • (GMT-04:00)America, Guyana
  • (GMT-04:00)America, Havana
  • (GMT-04:00)America, Indiana, Indianapolis
  • (GMT-04:00)America, Indiana, Marengo
  • (GMT-04:00)America, Indiana, Petersburg
  • (GMT-04:00)America, Indiana, Vevay
  • (GMT-04:00)America, Indiana, Vincennes
  • (GMT-04:00)America, Indiana, Winamac
  • (GMT-04:00)America, Iqaluit
  • (GMT-04:00)America, Kentucky, Louisville
  • (GMT-04:00)America, Kentucky, Monticello
  • (GMT-04:00)America, Kralendijk
  • (GMT-04:00)America, La Paz
  • (GMT-04:00)America, Lower Princes
  • (GMT-04:00)America, Manaus
  • (GMT-04:00)America, Marigot
  • (GMT-04:00)America, Martinique
  • (GMT-04:00)America, Montserrat
  • (GMT-04:00)America, Nassau
  • (GMT-04:00)America, New York
  • (GMT-04:00)America, Nipigon
  • (GMT-04:00)America, Pangnirtung
  • (GMT-04:00)America, Port of Spain
  • (GMT-04:00)America, Port-au-Prince
  • (GMT-04:00)America, Porto Velho
  • (GMT-04:00)America, Puerto Rico
  • (GMT-04:00)America, Santiago
  • (GMT-04:00)America, Santo Domingo
  • (GMT-04:00)America, St Barthelemy
  • (GMT-04:00)America, St Kitts
  • (GMT-04:00)America, St Lucia
  • (GMT-04:00)America, St Thomas
  • (GMT-04:00)America, St Vincent
  • (GMT-04:00)America, Thunder Bay
  • (GMT-04:00)America, Toronto
  • (GMT-04:00)America, Tortola
  • (GMT-03:00)America, Araguaina
  • (GMT-03:00)America, Argentina, Buenos Aires
  • (GMT-03:00)America, Argentina, Catamarca
  • (GMT-03:00)America, Argentina, Cordoba
  • (GMT-03:00)America, Argentina, Jujuy
  • (GMT-03:00)America, Argentina, La Rioja
  • (GMT-03:00)America, Argentina, Mendoza
  • (GMT-03:00)America, Argentina, Rio Gallegos
  • (GMT-03:00)America, Argentina, Salta
  • (GMT-03:00)America, Argentina, San Juan
  • (GMT-03:00)America, Argentina, San Luis
  • (GMT-03:00)America, Argentina, Tucuman
  • (GMT-03:00)America, Argentina, Ushuaia
  • (GMT-03:00)America, Bahia
  • (GMT-03:00)America, Belem
  • (GMT-03:00)America, Cayenne
  • (GMT-03:00)America, Fortaleza
  • (GMT-03:00)America, Glace Bay
  • (GMT-03:00)America, Goose Bay
  • (GMT-03:00)America, Halifax
  • (GMT-03:00)America, Maceio
  • (GMT-03:00)America, Moncton
  • (GMT-03:00)America, Montevideo
  • (GMT-03:00)America, Paramaribo
  • (GMT-03:00)America, Punta Arenas
  • (GMT-03:00)America, Recife
  • (GMT-03:00)America, Santarem
  • (GMT-03:00)America, Sao Paulo
  • (GMT-03:00)America, Thule
  • (GMT-03:00)Antarctica, Palmer
  • (GMT-03:00)Antarctica, Rothera
  • (GMT-03:00)Atlantic, Bermuda
  • (GMT-03:00)Atlantic, Stanley
  • (GMT-02:30)America, St Johns
  • (GMT-02:00)America, Miquelon
  • (GMT-02:00)America, Noronha
  • (GMT-02:00)America, Nuuk
  • (GMT-02:00)Atlantic, South Georgia
  • (GMT-01:00)Atlantic, Cape Verde
  • (GMT+00:00)Africa, Abidjan
  • (GMT+00:00)Africa, Accra
  • (GMT+00:00)Africa, Bamako
  • (GMT+00:00)Africa, Banjul
  • (GMT+00:00)Africa, Bissau
  • (GMT+00:00)Africa, Conakry
  • (GMT+00:00)Africa, Dakar
  • (GMT+00:00)Africa, Freetown
  • (GMT+00:00)Africa, Lome
  • (GMT+00:00)Africa, Monrovia
  • (GMT+00:00)Africa, Nouakchott
  • (GMT+00:00)Africa, Ouagadougou
  • (GMT+00:00)Africa, Sao Tome
  • (GMT+00:00)America, Danmarkshavn
  • (GMT+00:00)America, Scoresbysund
  • (GMT+00:00)Atlantic, Azores
  • (GMT+00:00)Atlantic, Reykjavik
  • (GMT+00:00)Atlantic, St Helena
  • (GMT+00:00)UTC
  • (GMT+01:00)Africa, Algiers
  • (GMT+01:00)Africa, Bangui
  • (GMT+01:00)Africa, Brazzaville
  • (GMT+01:00)Africa, Casablanca
  • (GMT+01:00)Africa, Douala
  • (GMT+01:00)Africa, El Aaiun
  • (GMT+01:00)Africa, Kinshasa
  • (GMT+01:00)Africa, Lagos
  • (GMT+01:00)Africa, Libreville
  • (GMT+01:00)Africa, Luanda
  • (GMT+01:00)Africa, Malabo
  • (GMT+01:00)Africa, Ndjamena
  • (GMT+01:00)Africa, Niamey
  • (GMT+01:00)Africa, Porto-Novo
  • (GMT+01:00)Africa, Tunis
  • (GMT+01:00)Atlantic, Canary
  • (GMT+01:00)Atlantic, Faroe
  • (GMT+01:00)Atlantic, Madeira
  • (GMT+01:00)Europe, Dublin
  • (GMT+01:00)Europe, Guernsey
  • (GMT+01:00)Europe, Isle of Man
  • (GMT+01:00)Europe, Jersey
  • (GMT+01:00)Europe, Lisbon
  • (GMT+01:00)Europe, London
  • (GMT+02:00)Africa, Blantyre
  • (GMT+02:00)Africa, Bujumbura
  • (GMT+02:00)Africa, Cairo
  • (GMT+02:00)Africa, Ceuta
  • (GMT+02:00)Africa, Gaborone
  • (GMT+02:00)Africa, Harare
  • (GMT+02:00)Africa, Johannesburg
  • (GMT+02:00)Africa, Juba
  • (GMT+02:00)Africa, Khartoum
  • (GMT+02:00)Africa, Kigali
  • (GMT+02:00)Africa, Lubumbashi
  • (GMT+02:00)Africa, Lusaka
  • (GMT+02:00)Africa, Maputo
  • (GMT+02:00)Africa, Maseru
  • (GMT+02:00)Africa, Mbabane
  • (GMT+02:00)Africa, Tripoli
  • (GMT+02:00)Africa, Windhoek
  • (GMT+02:00)Antarctica, Troll
  • (GMT+02:00)Arctic, Longyearbyen
  • (GMT+02:00)Europe, Amsterdam
  • (GMT+02:00)Europe, Andorra
  • (GMT+02:00)Europe, Belgrade
  • (GMT+02:00)Europe, Berlin
  • (GMT+02:00)Europe, Bratislava
  • (GMT+02:00)Europe, Brussels
  • (GMT+02:00)Europe, Budapest
  • (GMT+02:00)Europe, Busingen
  • (GMT+02:00)Europe, Copenhagen
  • (GMT+02:00)Europe, Gibraltar
  • (GMT+02:00)Europe, Kaliningrad
  • (GMT+02:00)Europe, Ljubljana
  • (GMT+02:00)Europe, Luxembourg
  • (GMT+02:00)Europe, Madrid
  • (GMT+02:00)Europe, Malta
  • (GMT+02:00)Europe, Monaco
  • (GMT+02:00)Europe, Oslo
  • (GMT+02:00)Europe, Paris
  • (GMT+02:00)Europe, Podgorica
  • (GMT+02:00)Europe, Prague
  • (GMT+02:00)Europe, Rome
  • (GMT+02:00)Europe, San Marino
  • (GMT+02:00)Europe, Sarajevo
  • (GMT+02:00)Europe, Skopje
  • (GMT+02:00)Europe, Stockholm
  • (GMT+02:00)Europe, Tirane
  • (GMT+02:00)Europe, Vaduz
  • (GMT+02:00)Europe, Vatican
  • (GMT+02:00)Europe, Vienna
  • (GMT+02:00)Europe, Warsaw
  • (GMT+02:00)Europe, Zagreb
  • (GMT+02:00)Europe, Zurich
  • (GMT+03:00)Africa, Addis Ababa
  • (GMT+03:00)Africa, Asmara
  • (GMT+03:00)Africa, Dar es Salaam
  • (GMT+03:00)Africa, Djibouti
  • (GMT+03:00)Africa, Kampala
  • (GMT+03:00)Africa, Mogadishu
  • (GMT+03:00)Africa, Nairobi
  • (GMT+03:00)Antarctica, Syowa
  • (GMT+03:00)Asia, Aden
  • (GMT+03:00)Asia, Amman
  • (GMT+03:00)Asia, Baghdad
  • (GMT+03:00)Asia, Bahrain
  • (GMT+03:00)Asia, Beirut
  • (GMT+03:00)Asia, Damascus
  • (GMT+03:00)Asia, Famagusta
  • (GMT+03:00)Asia, Gaza
  • (GMT+03:00)Asia, Hebron
  • (GMT+03:00)Asia, Jerusalem
  • (GMT+03:00)Asia, Kuwait
  • (GMT+03:00)Asia, Nicosia
  • (GMT+03:00)Asia, Qatar
  • (GMT+03:00)Asia, Riyadh
  • (GMT+03:00)Europe, Athens
  • (GMT+03:00)Europe, Bucharest
  • (GMT+03:00)Europe, Chisinau
  • (GMT+03:00)Europe, Helsinki
  • (GMT+03:00)Europe, Istanbul
  • (GMT+03:00)Europe, Kiev
  • (GMT+03:00)Europe, Kirov
  • (GMT+03:00)Europe, Mariehamn
  • (GMT+03:00)Europe, Minsk
  • (GMT+03:00)Europe, Moscow
  • (GMT+03:00)Europe, Riga
  • (GMT+03:00)Europe, Simferopol
  • (GMT+03:00)Europe, Sofia
  • (GMT+03:00)Europe, Tallinn
  • (GMT+03:00)Europe, Uzhgorod
  • (GMT+03:00)Europe, Vilnius
  • (GMT+03:00)Europe, Volgograd
  • (GMT+03:00)Europe, Zaporozhye
  • (GMT+03:00)Indian, Antananarivo
  • (GMT+03:00)Indian, Comoro
  • (GMT+03:00)Indian, Mayotte
  • (GMT+04:00)Asia, Baku
  • (GMT+04:00)Asia, Dubai
  • (GMT+04:00)Asia, Muscat
  • (GMT+04:00)Asia, Tbilisi
  • (GMT+04:00)Asia, Yerevan
  • (GMT+04:00)Europe, Astrakhan
  • (GMT+04:00)Europe, Samara
  • (GMT+04:00)Europe, Saratov
  • (GMT+04:00)Europe, Ulyanovsk
  • (GMT+04:00)Indian, Mahe
  • (GMT+04:00)Indian, Mauritius
  • (GMT+04:00)Indian, Reunion
  • (GMT+04:30)Asia, Kabul
  • (GMT+04:30)Asia, Tehran
  • (GMT+05:00)Antarctica, Mawson
  • (GMT+05:00)Asia, Aqtau
  • (GMT+05:00)Asia, Aqtobe
  • (GMT+05:00)Asia, Ashgabat
  • (GMT+05:00)Asia, Atyrau
  • (GMT+05:00)Asia, Dushanbe
  • (GMT+05:00)Asia, Karachi
  • (GMT+05:00)Asia, Oral
  • (GMT+05:00)Asia, Qyzylorda
  • (GMT+05:00)Asia, Samarkand
  • (GMT+05:00)Asia, Tashkent
  • (GMT+05:00)Asia, Yekaterinburg
  • (GMT+05:00)Indian, Kerguelen
  • (GMT+05:00)Indian, Maldives
  • (GMT+05:30)Asia, Colombo
  • (GMT+05:30)Asia, Kolkata
  • (GMT+05:45)Asia, Kathmandu
  • (GMT+06:00)Antarctica, Vostok
  • (GMT+06:00)Asia, Almaty
  • (GMT+06:00)Asia, Bishkek
  • (GMT+06:00)Asia, Dhaka
  • (GMT+06:00)Asia, Omsk
  • (GMT+06:00)Asia, Qostanay
  • (GMT+06:00)Asia, Thimphu
  • (GMT+06:00)Asia, Urumqi
  • (GMT+06:00)Indian, Chagos
  • (GMT+06:30)Asia, Yangon
  • (GMT+06:30)Indian, Cocos
  • (GMT+07:00)Antarctica, Davis
  • (GMT+07:00)Asia, Bangkok
  • (GMT+07:00)Asia, Barnaul
  • (GMT+07:00)Asia, Ho Chi Minh
  • (GMT+07:00)Asia, Hovd
  • (GMT+07:00)Asia, Jakarta
  • (GMT+07:00)Asia, Krasnoyarsk
  • (GMT+07:00)Asia, Novokuznetsk
  • (GMT+07:00)Asia, Novosibirsk
  • (GMT+07:00)Asia, Phnom Penh
  • (GMT+07:00)Asia, Pontianak
  • (GMT+07:00)Asia, Tomsk
  • (GMT+07:00)Asia, Vientiane
  • (GMT+07:00)Indian, Christmas
  • (GMT+08:00)Asia, Brunei
  • (GMT+08:00)Asia, Choibalsan
  • (GMT+08:00)Asia, Hong Kong
  • (GMT+08:00)Asia, Irkutsk
  • (GMT+08:00)Asia, Kuala Lumpur
  • (GMT+08:00)Asia, Kuching
  • (GMT+08:00)Asia, Macau
  • (GMT+08:00)Asia, Makassar
  • (GMT+08:00)Asia, Manila
  • (GMT+08:00)Asia, Shanghai
  • (GMT+08:00)Asia, Singapore
  • (GMT+08:00)Asia, Taipei
  • (GMT+08:00)Asia, Ulaanbaatar
  • (GMT+08:00)Australia, Perth
  • (GMT+08:45)Australia, Eucla
  • (GMT+09:00)Asia, Chita
  • (GMT+09:00)Asia, Dili
  • (GMT+09:00)Asia, Jayapura
  • (GMT+09:00)Asia, Khandyga
  • (GMT+09:00)Asia, Pyongyang
  • (GMT+09:00)Asia, Seoul
  • (GMT+09:00)Asia, Tokyo
  • (GMT+09:00)Asia, Yakutsk
  • (GMT+09:00)Pacific, Palau
  • (GMT+09:30)Australia, Adelaide
  • (GMT+09:30)Australia, Broken Hill
  • (GMT+09:30)Australia, Darwin
  • (GMT+10:00)Antarctica, DumontDUrville
  • (GMT+10:00)Antarctica, Macquarie
  • (GMT+10:00)Asia, Ust-Nera
  • (GMT+10:00)Asia, Vladivostok
  • (GMT+10:00)Australia, Brisbane
  • (GMT+10:00)Australia, Hobart
  • (GMT+10:00)Australia, Lindeman
  • (GMT+10:00)Australia, Melbourne
  • (GMT+10:00)Australia, Sydney
  • (GMT+10:00)Pacific, Chuuk
  • (GMT+10:00)Pacific, Guam
  • (GMT+10:00)Pacific, Port Moresby
  • (GMT+10:00)Pacific, Saipan
  • (GMT+10:30)Australia, Lord Howe
  • (GMT+11:00)Antarctica, Casey
  • (GMT+11:00)Asia, Magadan
  • (GMT+11:00)Asia, Sakhalin
  • (GMT+11:00)Asia, Srednekolymsk
  • (GMT+11:00)Pacific, Bougainville
  • (GMT+11:00)Pacific, Efate
  • (GMT+11:00)Pacific, Guadalcanal
  • (GMT+11:00)Pacific, Kosrae
  • (GMT+11:00)Pacific, Norfolk
  • (GMT+11:00)Pacific, Noumea
  • (GMT+11:00)Pacific, Pohnpei
  • (GMT+12:00)Antarctica, McMurdo
  • (GMT+12:00)Asia, Anadyr
  • (GMT+12:00)Asia, Kamchatka
  • (GMT+12:00)Pacific, Auckland
  • (GMT+12:00)Pacific, Fiji
  • (GMT+12:00)Pacific, Funafuti
  • (GMT+12:00)Pacific, Kwajalein
  • (GMT+12:00)Pacific, Majuro
  • (GMT+12:00)Pacific, Nauru
  • (GMT+12:00)Pacific, Tarawa
  • (GMT+12:00)Pacific, Wake
  • (GMT+12:00)Pacific, Wallis
  • (GMT+12:45)Pacific, Chatham
  • (GMT+13:00)Pacific, Apia
  • (GMT+13:00)Pacific, Fakaofo
  • (GMT+13:00)Pacific, Kanton
  • (GMT+13:00)Pacific, Tongatapu
  • (GMT+14:00)Pacific, Kiritimati

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    For the first time, the World Duchenne Organization will team up with RaDiOrg Rare Diseases in Belgium and SMA Europe in Germany to form a wider network of approximately 160 Patient Organizations all interested in how the FAIR principles could make a difference in optimising the use of patients’ data. 

    Combined with the expertise of clinicians from ERN EURO-NMD, this small event consortium hopes to provide the broader Rare Diseases network, a better understanding of what is being implemented at the European level in regards to data ‘visiting’ across borders. The word ‘visiting’ will replace ‘sharing’ as with FAIR technologies data stay at source.

    More information on the agenda and how to register follows soon.

    Add to Calendar 2022/11/22 13:00:00 2022/11/22 17:00:00 Europe/Amsterdam [Save the Date] 3rd International FAIR data 'visiting' for Duchenne & Other Rare Diseases For the first time, the World Duchenne Organization will team up with RaDiOrg Rare Diseases in Belgium and SMA Europe in Germany to form a wider network of approximately 160 Patient Organizations all interested in how the FAIR principles could make a difference in optimising the use of patients’ data. 

    Combined with the expertise of clinicians from ERN EURO-NMD, this small event consortium hopes to provide the broader Rare Diseases network, a better understanding of what is being implemented at the European level in regards to data ‘visiting’ across borders. The word ‘visiting’ will replace ‘sharing’ as with FAIR technologies data stay at source.

    More information on the agenda and how to register follows soon.
    Online false MM/DD/YYYY OPAQUE aOHdSwivlzRPdUtuMmVK47839
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    Online

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    World Duchenne Organization, info@worldduchenne.org