Sunday, March 19, 10:00am - 11:00am (EDT)
Your search did not return any results.
As parents of children with rare diseases, we tried to support our children as best we could. There were limited or no resources available. We connected with other organizations and learned to adapt to our rare disease.
We sought professional guidance from therapists, but sessions were expensive. This meant we needed to be strategic with the paid services. We found ways to incorporate strategies into our daily life at home.
We know the importance of early intervention. Our goal is to bring these occupational therapy strategies to caregivers so they can create the same supportive lifestyle.
Teach RARE, email@example.com