Play-Based Learning That Incorporates Therapy Goals
As parents of children with rare diseases, we tried to support our children as best we could. There were limited or no resources available. We connected with other organizations and learned to adapt to our rare disease. We sought professional guidance from therapists, but sessions were expensive. This meant we needed to be strategic with the paid services. We found ways to incorporate strategies into our daily life at home. We know the importance of early intervention. Our goal is to bring these strategies to caregivers so they can create the same supportive lifestyle.
Join us and MAKE A DIFFERENCE! Caregiver Lifestyle Series
Our first event was held in honor of Rare Disease Day. We will host an event on the 3rd Sunday of every month for a total of 5 events and one in-person meetup. Our next event on April 16th will focus on speech therapy and combine it with educational activities.
The Caregiver Lifestyle Series is a collaborative project by Hrabrisa and Teach RARE. Both non-profit organizations provide a similar mission and caregiver lifestyle strategies on different sides of the globe. They even share a nearly identical story of a daughter suffering from a rare neurotransmitter disorder. Their organizations have joined forces and experience to create an exceptional series of events. Available in more than 10+ languages! By caregivers and for caregivers.
We are creating a high-quality online educational support series for caregivers in rare diseases, undiagnosed diseases, and special needs communities. Each event in the series will occur on the 3rd Sunday of each month and focus on a specific therapy. Professionals will provide multi-tiered activities and strategies that caregivers can implement at home to support progress while making memories with their child.
- Meetup: Jan. 15, 2023
- Physical Therapy: Feb. 19, 2023
- Occupational Therapy: Mar. 19, 2023
- Speech Therapy: Apr. 16, 2023
- Sensory Integration: May 21, 2023
- Behavior Therapy: June. 18, 2023
- In-Person Event: To Be Announced